Harry's DCFC to NFFC walk for Team Ruby

Chris Archer is raising money for The Lily Foundation
£3,460
raised of £850 target by
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Harry's DCFC to NFFC walk · 29 June 2024

Please join Team Ruby and help her and The Lily Foundation fund vital research into mitochondrial disease and support families just like hers who live with the disease everyday. You can donate or why not take on your own challenge

Story

Ruby Wren Marshall was born perfectly healthy on 24/02/21 and remained so until she was around 6 months old when she was found to be severely anaemic. Her bone marrow wasn't working well. It would be a further 5 months until she was diagnosed with Pearsons Syndrome; a mass deletion of her mtDNA.

This means some of her mitochondria in her cells (which provide the energy for the cells to work) do not work properly. As she grows the faulty mtDNA will start overpowering the healthy ones resulting in failure of her pancreas, followed by liver, kidneys, eyes, ears, heart, muscles and her brain.

Science can and will beat this, but it needs to be sooner and not later for Ruby, She just needs better batteries in her cells.

Having seen his little cousin battle through these hard times, 8 year old, football and Nottingham Forest mad Harry decided he wanted to help by raising some money for her charity.

His plan is to walk the 18 miles between Pride Park Stadium, home of Derby County to The City Ground, home of Nottingham Forest on the 29th June 2024.

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About the campaign

Please join Team Ruby and help her and The Lily Foundation fund vital research into mitochondrial disease and support families just like hers who live with the disease everyday. You can donate or why not take on your own challenge

About the charity

The Lily Foundation

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The Lily Foundation funds research into Mitochondrial Disease and other metabolic disorders. It also raises important awareness and supports those families who are affected with metabolic disorders.

Donation summary

Total
£3,459.84
+ £747.51 Gift Aid
Online
£3,459.84
Offline
£0.00

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