I’m taking the plunge (literally) and I’ve put myself forward to do a skydive to raise money for the incredible Rainbows childrens hospice on August the 26th.

I’m a mummy to 2 beautiful boys. My youngest son, Albie, very heartbreakingly, has an incurable, life limiting, Neurological condition called Dravet syndrome. He’s unable to talk, sit, walk or even use his hands and arms. He is unable to do anything for himself and requires round the clock care, 7 days a week.

However, he is the happiest and most loved little boy you could ever meet. I can’t begin to explain how much, as a mum, it breaks my heart knowing there is nothing that can be done to help him. Every day is tough both emotionally and physically. Being the mum to a severely disabled child is, at times, extremely lonely and scary. However, I’m so lucky that Albie gets to attend the incredible Rainbows Hospice in Loughborough. This place is a happy place to him and our family. The hospice allows me to get a few days respite where I don’t need to worry that his level of care and needs are not being met. Not only do they care for him but the support they give to us is incredible and I honestly could not cope without them. I desperately want to give something back, not just for my son but for all those families who’s children also attend the hospice and sadly to the families who may, at some point, become part of the hospice family.

Any donation is so gratefully received. Thank you for taking the time to visit my JustGiving page.

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