In October my Dad was admitted to hospital with a condition yet to be diagnosed. There were loads of tests, none really giving us the response we needed.

Eventually in November, a neurologist shed light on this diagnosis and informed us that he has Myasthenia Gravis, a very rare condition that can effects 15 in every 100,000 people. A rare long-term condition that causes muscle weakness. It most commonly affects the muscles that control the eyes, eyelids, chewing and swallowing.

This, thankfully is a treatable condition but sadly not curable. Deano is managing this condition with the guidance from his neurologist and hopefully in the near future, he will have the Thymus gland removed which will aid the need for not taking such high doses of medication.

As many of you know, my Dad is an extremely tough cookie, and like every horrible condition, there are good days and bad days - but he chugs on. MYAWARE has helped shed light on how to deal with these daily challenges he's now facing, as well as providing insight for my Mum who has been with him every step of the way. It's tough to see Dad struggle with certain daily tasks, but knowing that there is the support network of my family, his friends and this amazing charity around him is something I'm really grateful for.

June is the Myasthenia Gravis awareness month - and I'm using this to raise some money to support a charity who mean the world to me and my family. I'll be running 100km in June (if I make it through the month) and I'd be delighted and very grateful if you could contribute if you can.

Wish me luck x

Cam