Hi. Thanks for spending a few minutes to learn about CMT and what we can do to help advance and deploy a cure.

As you may know, Quinn has had scoliosis since birth. He's also had a number of other challenges with his feet and ankles (which required ankle braces for years), hand strength, balance, feeling, etc. After a decade of searching for a reason, Quinn was only recently diagnosed with CMT (Charcot Marie Tooth) syndrome in July of '23. Since then, we have jumped in to learn as much as we can about CMT, the efforts around it, and what we can do to help.

CMT causes continuous degradation of nerves and muscles over time, in particular to hands and feet. Many with CMT undergo multiple surgeries, have lifelong braces, require wheelchairs and other support systems, and have deformities in their feet and hands. There are about 200k people in the US and ~3M worldwide diagnosed with CMT. Since 1991, there have been over 100 genes identified in causing CMT which have been grouped into a handful of types CMT (CMT type 1, 2, 4, X, etc.), and further by subtypes. Quinn's version is CMT-4C.

Through great effort and collaboration, we have worked with the CMTA to align the best genetic experts in the world around 'Project Foresee', a plan that will drive a known gene therapy solution through the FDA and other logical steps over the next three years. We know the path, now we can accelerate the cure!

Please join us in supporting Quinn and ~200k other Americans with CMT by providing the financial backing for Project Foresee, ultimately curing the first handful of patients in the next few years, followed by hundreds, thousands, and finally millions!

To learn more about Project Foresee, following is a link to the Foresee Gala content that includes presentations by: Dr Sue Bruhn: CEO of the CMTA / Dr Kleopas Kleopa: world renown CMT4C Scientist who uncovered the gene therapy cure / Dr. Steven Gray: leading researcher and neurologist, and Principal Investigator and Project lead for Project Foresee

PHENOMENAL Project Foresee presentations from the Foresee Gala

Link to CMTA Project Foresee webpage

Join our Facebook Group for ongoing updates and support

We welcome your support, communication, thoughts, and prayers 24 hours a day. More Life!