CMT, A letter to you.
Fundraising for Charcot-Marie-Tooth Association
Fundraising for Charcot-Marie-Tooth Association
My name is Gavin McDonald and I have Charcot Marie Tooth disease. CMT is a neurological disease that affects us lucky ones in so many different ways. My CMT has gifted me some good ole scoliosis, two foot deformities and a hard time dealing with temperatures. My diagnosis at 16 led to a spinal fusion and a reconstruction surgery of my left foot following shortly after.
I am a proud part of Compass, which is the young adult program at the CMTA ( Charcot Marie Tooth Association). We talk online and host in person social events and fundraisers. I found compass by attending the CMTA research summit event in September of 2022.
From clinical trials to camps for the kids, the CMTA funds many life changing opportunities. The CMTA is one of the highest rated charities. (1 of 15 to earn a perfect score on Charity Navigator)
My goal with fundraising is to help others feel comfortable in sharing their story and living their lives. I hope that I can help spread positivity and awareness. Compass is a beautiful group that helped me find comfortability in myself. In Showing off the fireworks that is the CMTA , my goal is to encourage everyone to find their own COMPASS.
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