This June I am participating in Dazzle Walk 2023 to raise money for The Ehlers-Danlos Support UK.

As EDS is a genetic condition I have had symptoms all my life but was not fully overcome with symptoms until I was 15. It then took 2 years to get a diagnosis after so many tests and doctors telling me I’m crazy. I’ve been diagnosed 10 years now , ill 12. EDS has left me crushed and unable to do anything, even eat or drink, by myself but I have tried so hard over the past 12 years to get to a good quality of life, whatever that looks like, and by joining in on this walk, just days after my illness anniversary, I will be standing up to my genetic condition and helping support all my fellow zebras with the money you have so kindly donated. This is my first time in all these years I will be fundraising for the EDS charity and I’d love you to be a part of my journey.