Story
In December 2022 my father was diagnosed with Motor Neurone Disease, which is a horrendous illness that only worsens with time and for which there is currently no cure. I'm walking 21 km on Saturday 27 Jan to raise money for Motor Neurone Disease Association, who provide specialist communication devices and care for people with MDN, and also conduct research into the causes of MDN.
If you'd like to donate anything then I'd be hugely grateful. It's not a disease that has received anywhere near the research or attention that it requires. Your support is hugely appreciated. XXX
More info:
Motor neurone disease (MND) is a progressive disease that attacks the motor neurones, or nerves, in the brain and spinal cord. This means messages gradually stop reaching muscles, which leads to weakness and wasting.
MND can affect how you walk, talk, eat, drink and breathe. However, not all symptoms necessarily happen to everyone and it is unlikely they will all develop at the same time, or in any specific order.
Although there is currently no cure for MND, symptoms can be managed to help you achieve the best possible quality of life.
We need your support.
£160 could fund a specialist communication app for a tablet/smartphone/laptop to enable a person with MND to continue to communicate with loved ones
£280 could fund the co-ordination of care for a person with MND at a care centre for a year
£1000 could pay for detailed analysis of the DNA of someone with MND to help us better understand the causes of the disease