I’m Aphrodite and am almost 58. I was diagnosed with Relapsing Remitting Multiple Sclerosis in 2018 after doctors were doing research about why I kept falling, losing my balance and numbness and so many other inexplicable things. I think my worst panic was when doctors talked about possibility of a brain tumour and was sent for further diagnostic tests. My MS was diagnosed after MRI showed lesions on my brain and spinal cord. Made sense to doctors but not me. What do I do? What’s the cure?

There is no cure YET for MS and many other neurological disorders but there is ongoing research. I had a disease modifying treatment in 2018 that has so far kept new lesions at bay. It was a drastic move for me but has given me quality in my life; now I just deal with symptoms of my illness and with the help of my MS Nurses & neurologist we find ways to deal with them comfortably. If and when things change again with new lesions I will talk with my neurological team about new and other treatment options. 

That’s why fundraising is important to me. “Giving hope, options and treatments to new generations of MS patients and fund the research and resources that make this possible for many thousands of people diagnosed”. Resources include information, nurse teams and support - without them, MS patients would be struggling even more. 

I just keep going - living my life as normally as I can. Bilateral knee replacement surgery created a new challenge but I promised my surgeon that I would lose weight and then began the slow process of rebuilding muscle in my legs.

I have a life;

I don’t feel sorry for myself - that’s not my style. 

I swim, cycle, work out and eat healthily. 

I won’t give up. I just keep going!

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