Along with the rest of my team, I'm raising money for MDUK, specifically in support of our friend and colleague Helen, whose son Eben has Muscular Dystrophy. We'll be undertaking the MDUK Pedal Paddle Peak challenge - an unconventional triathlon of sorts which involves a hilly 30 mile bike ride, a 2 mile canoe paddle across Ullswater; and a tough climb up Helvellyn Mountain which is the UK's second highest peak.

Eben's muscles are unable to produce Collagen IV protein and alongside his symptoms this led to him being diagnosed with Ullrich Congenital Muscular Dystrophy (UCMD). UCMD is a severe, life-limiting, progressive condition that leads to extreme muscle weakness. It affects the skeletal muscles which impacts areas like walking, if Eben gains the ability to walk he will lose this skill in early adolescence, he is also likely to face respiratory issues, muscle contractures and scoliosis later in life. Treatments and equipment are available to help manage these but sadly, there is currently no cure for UCMD. however there is hope in the form of promising research being done in this area.

80% of funds raised will go towards UCMD research and 20% will be kept in a welfare account for Eben's future needs.