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Joanne Barmasse

Andrew's running 2 for Tango2

Fundraising for Tango2 Research Foundation Incorporated
US$2,153
raised of US$2,000 target
Event: Shine a Light on TANGO2, from 1 February 2024 to 30 June 2024
Every year, our community rallies behind our mission to participate in our virtual campaign, Shine a Light on TANGO2. Participants come up with creative and meaningful ways to support our mission. Lead your own fundraiser and inspire others!

Story

Andrew is competing in 2 marathons this fall to raise funds for the Tango2 Research Foundation. Tango2 is a rare genetic disease. He will compete in the Von Trapp Marathon in Stowe, Vt on October 20th and in the Philly Marathon on Nov. 24th. We are asking your help by sponsoring Andrew in his challenge to compete in both races.

Andrew and I want to help Ryan and his family and the other families affected by Tango2 by raising funds to continue the all important research being done. The research funding has already lead to great improvement in the lives of these children.

At its worst Tango2 can cause metabolic crises and life threatening heart issues. But when a group of families shared their stories as part of a research project, a pattern emerged. Children that were most severely affected or were passing from Tango2 were not taking vitamins. While others like Ryan who never had a crisis, were.

Through additional research, scientists have discovered that B vitamins improve symptoms and are thought to prevent the most life threatening aspects of Tango2. In the four years since this discovery, no diagnosed child has succumb to Tango2.

There is still so much to be discovered and understand about Tango2 and what the future holds for these kids.

Your donation can make a difference!

Thank you for supporting Andrew and Tango2!

If you would like to watch a short video or listen to a podcast about the B Vitamin story click here:

Ryan's Before and After Video

Tango2 B Vitamin Story

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About the campaign

Every year, our community rallies behind our mission to participate in our virtual campaign, Shine a Light on TANGO2. Participants come up with creative and meaningful ways to support our mission. Lead your own fundraiser and inspire others!

Donation summary

Total raised
US$2,152.08
Online donations
US$2,152.08
Offline donations
US$0.00

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