Finley developed JMML at 6 years old, he battled his illness heroically, he had 3 stem cell transplants in under a year. Despite amazing care, he could not be cured and passed away on the 6th December 2021 aged 8.

Finley touched everyone he met. He continues to inspire so Nicki and Ben have set up this charity in his name to support others going through similar situations.