UPDATE

We are now a team!!

Olivia Clark (our glorious honorary Ross) has now signed up to participate in the trek and raise funds for this incredible charity.

Thank you so much from the bottom of our hearts. Every donation and message has meant the world but we are hopeful we can raise even more.

Go Team Rossi!

Amanda & Olivia xxx

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Not something I'd usually choose to share publicly but my mother, Carol, was tragically diagnosed with Motor Neurone Disease in January of this year.

We’ve since witnessed first hand how heartbreaking this condition is and how heavily reliant MND patients and the NHS are upon charitable organisations for both support in living with the disease and the clincial research so desperately vital to ending this cruel illness.

MND can leave families feeling totally helpless, overwhelmed, lost and alone. I know that our family will be eternally grateful to the support, guidance and kindness offered to us by charitable organisations who offer bespoke support which has come in many forms.

They don't know for sure what causes MND and while clinical trials are progressing, there is still no cure or treatment.

I've decided, like many others who have been rocked by this horrible condition, to do what I can to raise funds in the hope we get closer to a time where no other families have to experience this dreadful disease.

Yesterday, I signed up to participate in the Thames Trek in September on behalf of the Motor Neurone Disease Association, who work tirelessly to ensure patients enjoy the best care and quality of life following such a life changing diagnosis.

Crucially, they also offer hope, that one day, with enough resources, a cure can be discovered putting an end to the perpetual misery caused by MND.

Any donations, however large or small, would be greatly appreciated. As are your lovely messages which are a great source of comfort to Carol and I (and everyone who loves her).

Please share widely amongst your networks.

Thank you

Amanda ♥️

Motor neurone disease (MND) is a progressive disease that attacks the motor neurones, or nerves, in the brain and spinal cord. This means messages gradually stop reaching muscles, which leads to weakness and wasting. MND can affect how one walks, talks, eats, drinks and breathes. However, not all symptoms necessarily happen to everyone and it is unlikely they will all develop at the same time, or in any specific order. Although there is currently no cure for MND, symptoms can be managed to help achieve the best possible quality of life. We need your support.

£160 could fund a specialist communication app for a tablet/smartphone/laptop to enable a person with MND to continue to communicate with loved ones. £280 could fund the co-ordination of care for a person with MND at a care centre for a year. £1000 could pay for detailed analysis of the DNA of someone with MND to help us better understand the causes of the disease.