Ally Jones
Four Races for Rosalie
Fundraising for Tree of Hope
Story
I'm taking part in four races in four months, and decided to challenge myself to achieve a Personal Best time in every event to raise money for my friends and their daughter, Rosalie. You can read more about Rosalie below.
Inspired by Rosalie's parents, Tina and Phil, who have taken on countless challenges themselves. I've got all the motivation I need, just hope I've got the legs to do it!
I will be doing:
- Vitality London 10k (24 September - COMPLETE!)
- Great South Run (10 miles, 15 October - COMPLETE!)
- Gosport Half Marathon (19 November - COMPLETE!)
- Portsmouth Coastal Marathon (17 December, first marathon! COMPLETE!)
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ABOUT ROSALIE, by her parents:
Rosalie is a typical little girl in many ways. She's smart. She's funny. She loves people. She loves animals and she loves music (especially the Wiggles). She loves exploring the world. She laughs a lot. She gets grumpy when she is hungry (like her parents).
Rosalie has Rett Syndrome and this means life for her isn't like most other children. Rett Syndrome is a genetic neurological condition that effects brain development and means that Rosalie is reliant on help with all aspects of life. She understands much of what is said to her but can't communicate verbally. She is currently learning to use an eye gaze computer to help her learn to communicate but this is a very slow process. Physically, she is unable to walk or stand unaided and has limited use of her hands. Rosalie has a PEG feeding tube as she can't drink liquids safely. She has other health issues such as epilepsy and experiences several seizures a day, though we are trying to get these under control.
Her disability has a profound impact on her life and restricts her opportunities and life experiences. As Rosalie gets bigger it is becoming harder to physically care for her and to address this we have had adaptations done to our house to make it wheelchair accessible. As a family we love going for walks and visiting areas of natural beauty and would love for Rosalie to be able to join us. Any money that we raise will go towards a van and the adaptations required for Rosalie along with providing specialist and sensory equipment that will support and improve her physical and mental health and wellbeing.
Our vision is to create a safe haven for her where we can care for her easily and she can feel safe and content. Your donations will help us make this a reality.