Story
It was November 2023 when my mother in law was diagnosed with Motor neurone disease (MND), sending shock waves through the family.
It is heartbreaking to see this progressive disease take hold over the weeks and months since knowing that there is no cure.
I cannot begin to comprehend the challenges of living with MND, but the love and support of family and friends is crucial to get through each day.
Fundraising to support research is desperately required to improve diagnosis and treatment as well as providing support for those living with the disease and their caregivers.
As a rugby family the story of Rob Burrows was and is something we watched and took so much inspiration from. By taking on this personal challenge I hope to be able to spread awareness and in some small way contribute.
Any and all support is greatly appreciated!!
Motor neurone disease (MND) is a progressive disease that attacks the motor neurones, or nerves, in the brain and spinal cord. This means messages gradually stop reaching muscles, which leads to weakness and wasting.
MND can affect how you walk, talk, eat, drink and breathe. Although there is currently no cure for MND, symptoms can be managed to help you achieve the best possible quality of life.
MND Association Patron Rob Burrow CBE sadly died on 2 June 2024, four and a half years after he was diagnosed with motor neurone disease.
We need your support.
£160 could fund a specialist communication app for a tablet/smartphone/laptop to enable a person with MND to continue to communicate with loved ones
£280 could fund the co-ordination of care for a person with MND at a care centre for a year
£1000 could pay for detailed analysis of the DNA of someone with MND to help us better understand the causes of the disease