Why we have chosen #DazzleWalk23

After a lifetime of attending GP appointments and various specialist consultant appointments, I was finally diagnosed with Hypermobile Ehlers-Danlos Syndrome a few years ago in my early 40s.

This May, Gregg and I are participating in Dazzle Walk 2023 to raise money for Ehlers-Danlos Support UK. We aim to walk a minimum of 3 miles per day in May with a couple of 10+ miles walks. We are kick starting off early at the end of April with a hike across the Malvern Hills.

Snoop, our Blue Roan Cocker Spaniel will be joining us for all of our miles. Previously we have also raised money walking for The Dogs Trust and Prostate Cancer (March the Month).

Every penny donated is much appreciated, the EDS society are constantly working to raise awareness and fund research. Hopefully the length of time taken from first symptom to diagnosis can be quicker in future for so many people, helping to avoid unnecessary operations and medical procedures.

https://www.ehlers-danlos.org/what-is-eds/

https://www.ehlers-danlos.org/what-is-eds/information-on-eds/types-of-eds/

" Ehlers-Danlos Support UK improves quality of life for people living with the Ehlers-Danlos syndromes (EDS). We work across the UK to support, advise and inform those living with the condition and the medical professionals working with them "

“When you hear hoofbeats, think of horses, not zebras”

Zebra is a medical slang term for a surprising diagnosis. Although rare diseases are, in general, surprising when they are encountered, other diseases can be surprising in a particular person and time, and so “zebra” is the broader concept.

The term derives from the aphorism “When you hear hoofbeats behind you, don’t expect to see a zebra”, which was coined in a slightly modified form in the late 1940s by Dr. Theodore Woodward, a former professor at the University of Maryland School of Medicine in Baltimore. By 1960, the aphorism was widely known in medical circles.

Thank you :)

Ali, Gregg & Snoop