Kit was born in July 2023. He was a much loved younger brother to Alice and a longed for second child for Mike and Gemma. He was the most amazing little boy, he simply loved life; people, animals and music and was always so incredibly happy.

Two days after his 1st birthday he was unwell with vomiting and was sleepy. In A&E they discovered he had a low blood sugar level which prompted investigations and admission. They discovered he had acute liver failure and he was transferred to Birmingham Children’s Hospital the next morning.

Although his liver recovered, two days after discharge, Gemma and Mike were told the devastating news that Kit had a POLG related mitochondrial disorder (Alper’s Disease in his case). There is no cure and given his age and presentation, he was likely to deteriorate rapidly. They were referred to palliative care.

Thanks to the wonderful community nursing team and the palliative care consultant, Gemma and Mike managed to keep Kit at home, happy and comfortable. Kit passed away peacefully on the 15th September 2024.

He is missed beyond words but his family want his legacy to be one that can give hope to others affected by mitochondrial disease. By supporting The Lily Foundation fund research into finding a cure, the hope is that one day, other families will not be told "there is nothing we can do"

Please donate if you can and help me help them in memory of Kit.

Thank you