On the 30th September a small team of family and friends will push and pull Alfie on his chair cross country over some really tough terrain for a 26 mile marathon. This will be from Sebastian's Action Trust Charity in Basingstoke to Naomi House in Stockbridge and then back again, so please dig deep and help us support these amazing charities.

Alfie is a lovely 10-year-old boy with severe disabilities from birth. Main ones are quadriplegic cerebral palsy, bulbar palsy, epilepsy, unexplained SVT's and bradycardia's, profound learning difficulties, completely tube fed and recurrent chest infections (requiring lots of input on a daily basis to keep Alf well including using a nebuliser, oxygen, suctioning, repositioning and chest physio).

Alfie is completely reliant on 24-hour care and hoisting due to these complexities, which makes it really difficult to go on holiday or have a break with Alfie to cater to all his complex needs. Places such as Naomi House have helped provide this well needed break and change of four walls for us as a complete family with full accessibility. We are forever grateful for these times and opportunities of making memories. This is why we have chosen to do this marathon walk with Alfie, to raise money and awareness of these two amazing charities.

Naomi house is a respite place where a skilled support worker/nurse helps look after your child. You can stay or leave your child there. We have always stayed and accessed it with Alfie and his two siblings, as they see it as a holiday. This is great because even on stays where Alfie has had difficulty and struggled, Rob and I have been able to stay with him and help support the nursing team, whilst the two smaller boys get to still play and have a lovely time with the play team. This is really important to us as both younger boys have to change quite a lot of plans at short notice due to Alfie's unpredictable health needs, and I feel forever guilty and torn for them missing out.