Isobel and Eleanor are running the Santa in the City race in memory of their mum's friend's beautiful little boy, Aidan. Aidan was diagnosed with Mitochondrial disease ( a non treatable, non curable disease) aged 11 months. Until then he was a happy healthy normal little baby. He passed away in hospital on 1st March 2014 aged 19 months.

The girls are hoping to raise money for the Lily foundation who are a charity supporting families of children with mitochondrial disease and fund pioneering research into a cure for this debilitating life threatening disease.

Aidan’s mum will be on radio Sussex at 11:10 on 5th December talking about Aidan and mitochondrial disease. Do tune in! 😊

The Lily Foundation was founded in Lily's memory, having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today.

Did you know every twenty minutes a child is born who will develop Mitochondrial Disease by the age of 16! There is no cure for this disease which is for many, debilitating and life limiting.

Please stand with us and fight Mitochondrial Disease and fight for hope.