£1,690
raised of £1,000 target

Snowdon Climb for Cavernoma 2025 · 7 June 2025 · Start fundraising for this event

Cavernoma Alliance UK

Verified by JustGiving

RCN 1197257
We raise awareness of cavernoma to improve the lives of people affected

Story

On 7th June 2025, my wife Louise and I will be climbing Mount Snowdon in Wales, for Cavernoma Awareness Month and to help raise funds for Cavernoma Alliance UK (CAUK).

In 2011 I was diagnosed with a Cavernoma, after suffering a bleed on my brain which caused me to endure multiple seizures. Since then, I've been hospitalised several times due to further seizures.

Due to the position of the cavernoma, there are no corrective surgeries which I can undergo to remove the blood vessel, without an extremely high chance of being completely paralysed in my face and left hand side of my body. As a result, I've had to slowly come to terms with the fact this is the new norm, and the potential for another seizure could be round the corner at any moment.

It hasn't been an easy reality to accept, with the trauma of past seizures resurfacing in the form of severe panic attacks even when I'm on the most comfortable settings. Thankfully, with the love and support of Louise, I seeked help from a therapist whose impact on my mental help can't be understated.

This is why we've finally decided to take the initiative to raise awareness & money for people with Cavernomas and who've suffered far more than I have.

Any donations would be greatly appreciated, thanks!

💡 What is a cavernoma?

Cavernomas are clusters of abnormal blood vessels that look like raspberries. Found in the brain and spinal cord, these vessels have thin, leaky walls that can bleed without warning at any age. While 1 in 625 people are thought to have a cavernoma, 1 in 2,700 experience symptoms, including:

🍓Brain haemorrhages

🍓Seizures

🍓Neurological problems

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About the charity

Cavernoma Alliance UK

Verified by JustGiving

RCN 1197257
Cavernoma Alliance UK (CAUK) supports people affected by cavernoma. A cavernoma is a common but often unheard of condition caused by a cluster of abnormal blood vessels in the brain or spine. Our mission is to improve the quality of life for those affected through education, support and research.

Donation summary

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£1,690.00
+ £287.50 Gift Aid
Online
£1,690.00
Offline
£0.00

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