Story
Hi all, thank you for taking the time to hit the link and come and check out my fundraising page!
I have decided to run the London Marathon next year to raise awareness of Duchenne Muscular Dystrophy whilst raising funds for The Duchenne Family Support Group.
The Duchenne Family Support Group does incredible work supporting families who have been affected by Duchenne Muscular Dystrophy. It's a charity run by families for families, and it holds a special place in my heart as my youngest Son Dexter has recently received this earth shattering diagnosis.
I am training hard, with the goal of completing in sub 3 hours (being very optimistic), but it's made a little easier knowing that I am raising awareness for Duchenne Muscular Dystrophy and that the money raised will help families like my own to navigate through this devastating diagnosis and provide the support they need at what can be a very difficult time.
DMD is a genetic disease that causes muscle weakness and wasting. It is the most common and severe form of muscular dystrophy.
It is caused by a fault, known as a mutation, on the dystrophin gene. Dystrophin is a protein that protects muscles; without it, muscles are easily damaged, and their strength and function is weakened. It eventually affects all the muscles in the body, including the heart and lungs.
DMD almost always affects boys. It is typically diagnosed in childhood between the age of three and six.