Story
Anyone who knows me, knows I love a challenge. This year I will attempt to complete my toughest challenge ever whilst raising awareness and funds for Prader-Willi UK, a rare genetic syndrome which my daughter Iona suffers with. I will be attempting four marathon swims which are
24 June Lake Conniston 5.25 miles
15 July Lake Ullswater 7.5 miles
16 August Solo crossing of English Channel 22+ miles
2 September Lake Windermere 11 miles
The training and actual swims will be tough however nothing compared to what my daughter endures on a daily basis.
Prader-Willi is a rare genetic disorder which causes low muscle tone, moderate learning difficulties, emotional and social immaturity, challenging behaviour and an overwhelming and insatiable chronic appetite and if not managed will cause life treating obesity.
Myself and Elaine still struggle to understand this and find it very challenging after fifteen years. However Iona is so loving and a joy to have, sometimes 😀.
Thanks for taking the time to visit my JustGiving page.
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