TruckSimFM COL6DAY 2025

Ajax TSFM is raising money for Genetic Alliance UK

24hr Radio Stream · 6 June 2025

Genetic Alliance UK
Campaign by Genetic Alliance UK (RCN 1114195)
We know high quality care transforms lives. Support our mission for faster diagnosis, better coordinated care, greater awareness among health professionals, and access to treatment for people living with rare, genetic, and undiagnosed conditions.

Story

TruckSimFM Charity Day 2025!

We will come together to support the first ever

#COL6RELATEDMYOPATHY

Mark your calendar for the 6th of June 2025,

and join us in the efforts to support

the rare patient community and advance

the Global Collagen VI Network.

Participation and support are so crucial.

Why are we supporting this cause?

As owners of TruckSimFM Ajax & Pixie have a little boy called Ollie who has this very condition called Ulrich Muscular dystrophy so raising awareness and donation and supporting the charity in the just giving link will hopefully raise vital funds to finding a cure and it takes us one step closer to helping thousands of other col 6 patients around the globe.

What we are doing?

24HR radio stream plus!!! A convoy 🚚 join the link for all the information: https://truckersmp.com/events/28189

WHAT ARE WETALKING ABOUT?

A diagnosis of a rare disease from

COL6 deficiency is an extremely

difficult experience that puts even

the strongest person in the world

in a vulnerable condition.

Ullrich Muscular Dystrophy,

Bethlem Myopathy, Myosclerosis

and intermediate forms are

caused by mutations in the

COL6A1, COL6A2, COL6A3 genes.

Inheritance may be autosomal

dominant or recessive.

Please join us on the 6th June 2025 for a full day of entertainment!

All donations go to Genetic Alliance UK

Helpful link:https://col6.world

Help Ajax TSFM

Sharing this page with your friends could help raise up to 3x more in donations

You can also help by sharing this link on:

About the campaign

We know high quality care transforms lives. Support our mission for faster diagnosis, better coordinated care, greater awareness among health professionals, and access to treatment for people living with rare, genetic, and undiagnosed conditions.

About the charity

Genetic Alliance UK

Verified by JustGiving

RCN 1114195
We are a national alliance of over 220 charities and patient support groups. Together we advocate and campaign for the 3.5 million people in the UK with a rare, genetic or undiagnosed condition - improving diagnosis, care coordination and treatment options. We run Rare Disease UK and SWAN UK.

Donation summary

Total
£60.00
+ £15.00 Gift Aid
Online
£60.00
Offline
£0.00

Charities pay a small fee for our service. Learn more about fees