TruckSimFM COL6DAY 2025

24hr Radio Stream · 6 June 2025
TruckSimFM Charity Day 2025!
We will come together to support the first ever
#COL6RELATEDMYOPATHY
Mark your calendar for the 6th of June 2025,
and join us in the efforts to support
the rare patient community and advance
the Global Collagen VI Network.
Participation and support are so crucial.
Why are we supporting this cause?
As owners of TruckSimFM Ajax & Pixie have a little boy called Ollie who has this very condition called Ulrich Muscular dystrophy so raising awareness and donation and supporting the charity in the just giving link will hopefully raise vital funds to finding a cure and it takes us one step closer to helping thousands of other col 6 patients around the globe.
What we are doing?
24HR radio stream plus!!! A convoy 🚚 join the link for all the information: https://truckersmp.com/events/28189
WHAT ARE WETALKING ABOUT?
A diagnosis of a rare disease from
COL6 deficiency is an extremely
difficult experience that puts even
the strongest person in the world
in a vulnerable condition.
Ullrich Muscular Dystrophy,
Bethlem Myopathy, Myosclerosis
and intermediate forms are
caused by mutations in the
COL6A1, COL6A2, COL6A3 genes.
Inheritance may be autosomal
dominant or recessive.
Please join us on the 6th June 2025 for a full day of entertainment!
All donations go to Genetic Alliance UK
Helpful link:https://col6.world
Charities pay a small fee for our service. Learn more about fees