As part of Constellation Group charity event, I will be walking 26 miles around Surrey Hills to raise money for Action for AT, BCA have done a lot of work with Action for AT over the last few years, who do some amazing work raising money for medical research to ultimately try and find a cure or medical advancement that will enable children who suffer with Ataxia Telangiectasia (A-T) to live a longer and healthier life.

Action for A-T provides support and funds high quality peer reviewed medical research to speed up the process of identifying a cure for Ataxia Telangiectasia (A-T). Anyone who has a child diagnosed with A-T, realises immediately and agonisingly that their lives will be changed forever and that the future holds a number of very difficult challenges for their child both physically and emotionally.

Founded in January 2012 by parents of a child diagnosed with A-T, Action for A-T understand what that feeling is like and is committed to making a difference to those affected by funding high quality medical research.

In the UK, research funding for A-T is extremely limited so Action for A-T was established to increase investment in A-T research and raise awareness of the condition.

What is ATAXIA TELANGIECTASIA?

Ataxia Telangiectasia (A-T) is an extremely complex condition that affects a variety of different systems in the body and generally appears in early childhood. Research into A-T can also give insights into more common conditions like cancer, compromised immune system, lung conditions and health generally. A-T occurs in approximately 1 in 300,000 live births. However, A-T diagnosis can be delayed or missed due to its similarities with other conditions.

For many people living with a rare condition such as A-T, sustainable, high quality medical research offers hope for the future. Hope that there will be something that will change the difficulties they face in every day life. Hope that the prognosis may be improved, and hope that increased interest in A-T will lead to greater understanding of not only this disease but others too.

Your support will make a difference!

https://actionforat.org/action-for-a-t-about-us/about-ataxia-telangiectasia/