On the 24th of July, my siblings and I lost our Mum after 15 years of fighting against Huntington’s disease. This cruel disease targets the brain, and in doing so, strips a person of their abilities to walk, talk, move their limbs and by the end, even eat and breathe.

My Mum’s passing is a recent event, and Olly Gittoes and I had already planned to do this Hyrox competition. Whilst it is slightly late notice getting the fundraising out there, I would like to make this the start of a series of fundraising events I do in order to raise awareness and money for Huntington’s disease charities, whilst also helping us keep my Mum’s spirit alive.

It is quite a rare disease with an estimated 6,000 people living with it in the UK. As well, any child of a parent with the disease also has a 50% chance of developing Huntington's. Hopefully, with our support, we can go some way towards helping find a cure or treatment to help those currently living with the disease or those that might be growing into it.