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Myotubular (centronuclear) myopathy is a rare genetic muscle condition affecting mostly boys from birth. It causes profound muscle weakness, dangerously affecting the muscles that control breathing & swallowing. We fund research but also raise awareness & we support affected families and patients.
Myotubular Trust
contact@myotubulartrust.org
Myotubular Trust Registered charity number 1137177
"For fundraiser being completed in London by Antony and Simone Burley"
Julie Draper donated
$20.00 + $0.00 Gift Aid
"Your dedication to Myotubular Trust inspires me to support your cause. Keep up the amazing work! Ps, it's Harry Beck's birthday so of course I am donating xx"
M L donated
"In memory of Oliver Coates Ulrichsen"
Niels and Brenda Ulrichsen donated
£100.00 + £0.00 Gift Aid
"In memory of Ian Lennox."
Anonymous donated
£20.00 + £5.00 Gift Aid
"In Ian Lennox's memory with love from Trisha Hayman and Liz Harman"
Elizabeth Harman donated
£100.00 + £25.00 Gift Aid
"In memory of Uncle Ian, Captain Ian Lennox xx"
Caroline, Nigel, Stephanie, Daniel and Emma donated
£50.00 + £12.50 Gift Aid
