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Myotubular Trust

We fund research projects to find a treatment for myotubular myopathy

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About Myotubular Trust

Myotubular (centronuclear) myopathy is a rare genetic muscle condition affecting mostly boys from birth. It causes profound muscle weakness, dangerously affecting the muscles that control breathing & swallowing. We fund research but also raise awareness & we support affected families and patients.

Myotubular Trust

contact@myotubulartrust.org

Myotubular Trust Registered charity number 1137177

Donation message

"In memory of my little friend Reece Fairhurst"

Alison Johnson donated

Donation message

"Just keep on walking…"

Jane Neal donated

£500.00 + £125.00 Gift Aid

Donation message

"In memory of Sue Leaver who I will always remember as an amazing, positive and fun loving lady xxx"

Rosie donated

£10.00 + £2.50 Gift Aid

Donation message

"On behalf of baby Oisin Relihan"

The Stack Family from Cork donated

£40.00 + £0.00 Gift Aid

Donation message

"Many amazing people helped us raise this money in our son's memory so you can continue the research on a cure for XLMTM so no other parent has to go through the loss of a child. Shine bright Max! WLY"

Kelly, James & Max donated

£2,000.00 + £500.00 Gift Aid

Donation message

"A drone found in our garden over Xmas had a reward for recovery and what better place to send it. Keep up the great work."

Robert & Pamela Hudson re our neighbour Harry Beck donated

£100.00 + £25.00 Gift Aid