About Med13L Foundation
The MED13L Foundation coordinates and collaborates with the global scientific community to understand the function of the MED13L gene in order to develop effective treatments and a cure for MED13L syndrome. The Foundation also provides educational and emotional support for those affected by MED13L.
https://med13l.org/
kbboychuck@med13l.org
Med13L Foundation Registered charity number 822469441