Thanks for taking the time to visit my JustGiving page.

As many of you know I've been sewing up a storm making cloth face masks for family, friends, colleagues and anyone else who needs one (have now donated more than 300 masks!).   More and more people have been asking about how they might make a donation to charity on my behalf, so thought I should make the most of the kind offers and set up a fundraising page for a good cause. 

The month of May is Prader-Willi awareness month, so would be great to raise some much needed funds for this fantastic charity.     As some of you will know my 3 year old nephew Albie suffers from Prader-Willi Syndrome (PWS), which is a genetic disorder that occurs in approximately one out of every 15,000 births.   Research is so vital to the development of therapies which can improve the lives of people living with PWS.

PWS was first described by Swiss doctors Andrea Prader, Alexis Labhart, and Heinrich Willi in 1956 based on the clinical characteristics of nine children they examined. The common characteristics defined in the initial report included small hands and feet, abnormal growth and body composition (small stature, very low lean body mass, and early-onset childhood obesity), hypotonia (weak muscles) at birth, insatiable hunger, extreme obesity, and intellectual disability.  PWS results from an abnormality of chromosome 15, and definitive diagnosis is now based on genetic testing.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.