About BBS UK
We support people diagnosed with BBS, their parents, carers, and siblings as well as professionals involved in all aspects of the care and support of people with BBS in the UK.
We are a user-led organisation, represented by adults with Bardet-Biedl Syndrome (BBS) and parents of children with BBS.
www.bbsuk.org.uk
admin@bbsuk.org.uk
BBS UK Registered charity number 1181244
