About Little Hero
We launched Little Hero in 2019 after our little boy Will died following a 9 month battle with an aggressive version of a brain tumour called Medulloblastoma. Despite the devastating impact this had on our family, we were inspired by Will and his amazing fight and wanted to continue his effort to support other families. We have the following charitable aims:
To fund critically needed research into new treatments for childhood brain tumours.
To support other UK families facing a childhood cancer diagnosis.
Our efforts have two main programme in flight:
We are creating ‘Will’s Woodland’! A retreat in Devon for families on a childhood cancer journey to be able to take a free break in safety and seclusion away from a hospital setting to find time to just be as a family. This is amazingly important as these vital months of life are often dominated by a hospital environment.
We are funding INSTINCT 2, a new 5 year research programme into developing new treatments into childhood brain tumours led from Newcastle university. This is the major UK effort in discovering new potential clinical treatments and comes at a critical time where new genetically tailored or immunotherapy treatments are due to emerge alongside more traditional (and sadly only partly effective) chemo/radiotherapy.
www.littlehero.org.uk
john@littlehero.org.uk
Little Hero Registered charity number 1194275
