Updated on Jan 19th 2013 at 6:04 PM from the JustGiving API

Hi everyone. My page is all set up and I'm making a paper form for my non technical supporters. I'm also using this as a good excuse to finish sewing my PJs!

Thanks for taking the time to visit my JustGiving page.

I've been diagnosed with Fibromyalgia/CFS/ME for 5 years although I have suffered with it for much longer than this. It is a much misunderstood illness which many people think means "you're a bit tired all the time" but there is much more to it than that. If you are interested in learning more then you can ask (I promise to answer all questions as honestly as I can) or here is a link to some more information. 

A group of us are having a sponsored PJ day on Sunday May 12th which is fibromyalgia/ME/CFS awareness day. A PJ day may not seem as 'worthy' as someone running a marathon but for us sufferers just getting through a day in one piece can be as taxing as running a marathon. Keeping it as something with quite a low energy level also means that those of us with very limited energy are as able to join in as those in a better position. 

I've chosen action for ME as my charity as i hope one day through their continuing research they will find a cure. 

It doesn't matter if you can spare 50p or £50 your donation could literally change my life!!! so please donate whatever you can. 

Thank you 

Leigh xxxx 

 

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