Laura Downie

Team Teddy

Fundraising for UNIQUE (Rare Chromosome Disorder Support Group)
£2,354
raised of £500 target
Donations cannot currently be made to this page
Event: Edinburgh Kiltwalk 2024, on 15 September 2024
We Provide support and information to improve the care of those affected

Story

On September 15th, my best friend Siobhan and I will participate in the Kiltwalk’s Big Stroll in Edinburgh, to raise funds for Unique, a charity dedicated to supporting those affected by rare chromosome and genetic disorders.

This cause is incredibly important to us, as my son Teddy was diagnosed with the rare genetic condition TUBA1A in April 2024.

Unique has been an invaluable resource for families like ours, offering support, information, and a community for those navigating the challenges of rare genetic conditions. By donating, you're helping Teddy and others like him receive the best care and support possible, and you're contributing to vital research that can improve lives.

Every step we take is for Teddy and the many families who rely on Unique. Please consider supporting our walk—your generosity can make a world of difference. Thank you!

Share this story

Help Laura Downie

Sharing this page with your friends could help raise up to 3x more in donations

You can also help by sharing this link on

About the charity

Unique provides much needed help and information to those caring for a family member with a rare chromosome or single gene disorder. These are lifelong conditions affecting at least 1 in 200 babies, causing disability and medical issues. For more information see www.rarechromo.org

Donation summary

Total raised
£2,353.65
+ £506.25 Gift Aid
Online donations
£2,353.65
Offline donations
£0.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.