Hi I'm Noah Reah I was 8 when I opened this now I'm 10 years of age. I have a rare Brain condition called...
Chiari brain malformation It effects my cerebellum (The back of my brain) spinal cord and flow which controls my balance and fine motor skills . It also makes my head hurt ALOT. I'm due to have brain surgery in August 2015 Dr Bukhari is going to do this for me .This will not cure me but it will relieve some of my symptoms for a while. The money I collect I'd like to give to the X-ray department at the Royal Manchester children's hospital. It's 2017 now and exactly 2 years later I'm having the same brain surgery Chiari sucks:(
I’ve already raised funds for some new up to date equipment for the MRI's and X-Ray machines to help children like me get the very best care. Lying still is really hard. Especially when trying your sick. Did you know you have to be super still for such a long time . That's hard to do when your scared and worried and in pain.
I need the MRI scanners to monitor my condition. I don't like being in these machines but I understand I have to have these tests done to managed my condition. Other wise I could become dangerously ill.
The Manchester children's hospital are always looking for funds to get us better and bigger equipment to help us get us fixed again.
I really like helping and raising money for my hospital.
I'd love one day to raise all the money to buy a special DVD player to go in the MRI . As some of you may know the scanner can not have and metal in there so this DVD player will need to be super special .
At the moment I’m looking at supporting ward 78 at the children’s hospital achieve their wish list . They always look after me so well . They take really good care of me. When I am there they keep me entertained and keep my mind busy with activities so I’m not focusing on the pain. I need your help to reach my target. The wonderful resources that are available to the children on the ward cost lots of money.
This all becomes possible with the help from you and me.
Please help me raise awareness of my condition CHIARI BRAIN MALFORMATION and raise a good amount of cash to buy some of this equipment.
http://www.nhs.uk/conditions/chiari-malformation/Pages/Introduction.aspx
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