I'm taking part in Cure EB's Butterfly Run this year, to help find a cure for this terrible disease. Cure EB funds medical research to find a cure for epidermolysis bullosa (EB), a severe genetic skin condition that leads to blistering and skin loss at the slightest friction. Children with the condition are often referred to as 'Butterfly Children' as their skin is said to be as 'fragile as a butterfly's wings'. Please support me in any way you can, so that a cure can be found to enable children and adults to fly free from the pain of EB and have the blisters and wounds stop. To find out more about Cure EB and the research they fund, visit www.cure-eb.org.