Every year, the TANGO2 community rallies together to participate in our virtual campaign, Shine a Light on TANGO2. I participate because I want to make a difference in the lives of children and young adults living with TANGO2 .

There is not a lot of information about this condition, when I saymy grandson has Tango 2, they are confused and really don't get it. My aim is not only to raise awareness but to raise money for ongoing research in order to find a better way of dealing with this condition.