Story
Thanks for visiting William's fundraising page!
A lot has happened since William's diagnosis in Jan 2020. Despite COVID, William made great strides (figuratively and literally):
**Learned to walk and gained gross motor independence playing on playgrounds and at splash pads all summer.
**Transitioned daycare rooms to be with peers his age.
**Started Early Childhood Special Education.
**Improved his communication and fine motor skills, which are improving daily, with the support of private therapy.
As parents, we are inspired by William's determination, persistence, and positive attitude. His laugh, smile, and resilience feed our energy to continue to fight every day for him and do our part to raise awareness and funds for a cure.
We can't do it alone!
Whether you are a first time donor or one of our 195 supporters from last year, remember, together we CAN cure Angelman syndrome.
**FAST researchers know exactly what causes Angelman syndrome (AS) and have already cured it in the laboratory.
**Because of donors like you and the motivation of FAST, in just 5 years, the roadmap to a cure has 10 programs in IND/FDA enabling studies or clinical trial status (4 are in clinical trials and a 5th is about to start)!
For William, that gives us hope that one day, he could say "I love you" to us, have more balanced motor coordination so things like drawing/using utensils would come easier, and live more independently.
So your donation, large or small, is critical to the success of research and finding a cure!
**It will help fund critical research and ensures all promising treatments reach every individual with AS.
**Over 90% of your donation goes DIRECTLY to research as FAST operates on a very low administrative cost.
**Can be doubled if you ask your employer to match your donation.
Thank you in advance for your generosity!
xoxo,
The Edbergs