Thanks for taking the time to visit my JustGiving page. Please see why I am raising money for GOSH and give some time to learn more about the importance of being an organ donor;

There is a chronic shortage of donor organs of all types in the UK and for all ages, however for children of Rosie’s age and size the shortage is severe. Just 31% of adults in the UK are signed up to the organ donor register and it is believed that only 40% of parents would agree to donate their child’s organs in the event of their death.
The Register for Rosie campaign hopes to drastically turn these figures around by sharing Rosie’s story.

Rosie was diagnosed with Restrictive cardiomyopathy (RCM) which is a disorder of the heart muscle where the walls of the lower chambers of the heart (ventricles) become stiff and restrict the heart’s ability to fill with blood. The pumping action (systolic function) of the ventricle is normal in most people affected by RCM, but the diastolic function (when the heart is at rest) is not. Stiffness can cause the backup of blood in the lungs and veins in the neck and liver. People who have the condition are at risk of developing heart failure. It was explained that the end result of this condition is sadly inevitable, the heart will eventually be too weak to function and will fail.

At the start of 2016 Rosie’s first routine check-up of the year at GOSH arose a fresh concern. Rosie was not growing in size or strength due to her heart not working hard enough so the decision was made to fit her with an NG feeding tube through her nose and into her tummy. The NG tube would help to get her as fit and healthy as possible in preparation for a heart transplant as soon as a donor was found.

On Friday 5th February Rosie had an incredibly risky five hour operation to fit the Berlin Heart. She is currently in intensive care at GOSH, her parents hope that she can transfer to Bear Ward soon while she waits for a new heart.

Please visit http://www.registerforrosie.com/rosies-story/ for the full story and please support me in this cause.