Story
Hello, thank you for stopping by my page!
I was born with nystagmus as a side effect of aniridia. Nystagmus means my eyes shake and wobble involuntarily all the time, and as a result it's hard for me to see detail and read text unless it's close up or enlarged.
I struggled with my confidence in early childhood, but went on to make many friends, get a degree and secure a good job. And recently I've moved to London, an amazing, exciting city. I'm really enjoying trying new things, meeting new people and taking up new opportunities, as part of which I've formed a close connection with the Nystagmus Network. My adventures to date are documented on my blog and Youtube channel at www.welleyenever.com.
So on the 21st October 2018 I took on my biggest challenge and greatest opportunity yet - abseiling 80 metres (262 feet) down the ArcelorMittal Orbit tower in the Olympic Park! I had never abseiled before that, but the prospect excited me - raising money for a great cause while enjoying amazing views and trying something completely different, what's not to like?
It was an absolutely incredible experience, and one that I would happily do again. There were nerves to begin with, sure, and it did take a minute or two to override my natural reflexes and step off the platform into mid-air. But once I did, it was very relaxing and comfortable, and the views were strunning in the glorious sunny weather.
The money raised will fund pioneering research into nystagmus at Moorfields Eye Hospital and the University College London Institute of Ophthalmology, including Vijay Tailor's study into nystagmus and visual crowding, and Parashkev Nachev's work on magnetic implants to control rapid eye movements. These projects have the potential to make a huge difference to many thousands of people's lives.
My visual impairment hasn't stopped me being happy and successful, and it didn't stop me from doing this. Your support so far really got me through it, and any more donations you can give will be hugely appreciated.
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Thank you so much for your support, I am very grateful indeed!