Katie Studley

Our big walk for FPWR UK

Fundraising for Foundation for Prader-Willi Research UK
£2,052
raised of £1,000 target
Donations cannot currently be made to this page
A big walk for FPWR UK, 6 July 2021
We fund research in Prader-Willi Syndrome to give hope for a brighter future

Story

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The Team:

KaPOW

Nimmo

Rolly

Blitz

Saffa

Amzilla

Hamma

Terror

Bread

Walker

Loopy

Our big walk:

7 years ago we did a big walk in memory of our wonderful friend who was taken too soon. 

This year we want to get the gang back together and take on a (slightly less) gruelling walk to raise money for PWS research, in support of my son's rare genetic condition. 

FPWR UK are the leaders in PWS research for our country and are attempting to find treatments (and hopefully one day a cure!) for this very complex genetic condition. 

Our walk will take us along the beautiful South West Coast Path, from Sennen Cove to Mousehole, taking in many of the sights that it was too dark for us to see last time! 

We are notoriously crap at any sort of training so will be doing this 16 miler with tonnes of enthusiasm and very little else! 

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About the charity

The mission of Foundation for Prader-Willi Research UK (FPWR UK) is to eliminate the challenges of Prader-Willi Syndrome through the advancement of research. High quality research will lead to more effective treatments and an eventual cure for this disorder. FPWR UK was founded in 2010 by parents of children with Prader-Willi Syndrome.

Donation summary

Total raised
£2,051.08
+ £326.75 Gift Aid
Online donations
£2,051.08
Offline donations
£0.00

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