Story
This May, I am taking part in the Walk Your AS Off challenge to raise awareness about axial SpA, and vital funds to transform the diagnosis and care of people living with axial SpA.
Axial spondyloarthritis (axial SpA) affects an estimated 220,000 people in the UK. Inflammation, where muscles attach to the bones, cause extreme pain, exhaustion and limited movement. It's an invisible and often misdiagnosed condition, and on average, it takes over eight years to receive a diagnosis. If left untreated and if symptoms are not managed, axial SpA can permanently fuse the bones.
I was diagnosed in May 2021 after years of fighting to be heard. This is my way of helping others that have yet to be diagnosed or those like me that still use the support NASS offers every week!
I'm fundraising to support NASS, the only charity in the UK dedicated to transforming the diagnosis, care and treatment of everyone living with axial SpA. NASS doesn't receive any statutory funding, so every penny I raise will make a big difference.
Please dig deep and sponsor me!