Story
This May I am participating in Dazzle Walk 2022 to raise money for The Ehlers-Danlos Support UK.
My sister Rosina became ill when she was 9 years old, she is now 14. She waited almost 5 years for a diagnosis. She has lots of horrible symptoms that affect her everyday and affect what she can do everyday. She is very brave and I want to help the charity to help people get their diagnosis quicker so there is less suffering.
I am going to walk with some of my good friends. We will wear something zebra themed. The zebra is the mascot for the EDS charity as doctors are trained to look for horses and not zebras - sometimes however you will come across some zebras!!