Story
Hello friends,
I am raising awareness for Ehlers Danlos Syndromes and Celiac Disease in May by walking a 5K every day. This year I am directing any donations to the Ehlers Danlos Society to help research genetic markers (and eventually a cure) for Ehlers Danlos.
I am asking friends and family to walk (wheel, run, or swim) at least one 5K this month to support me in this endeavor. If you are up to the challenge, let me know and I will mark your miles on my tracker. Or you can add your own by joining the team fundraising page here:
http://www.justgiving.com/team/5kADayInMay2022?invite=true
I’d love to have 1000 miles completed but I am sure we can complete more!
I’ve also included some links to information about Ehlers Danlos and Celiac below and I am happy to answer any questions if you have them.
https://stepbeyondmay22.funraise.org/
https://www.ehlers-danlos.com/may-awareness/awareness-walk-n-roll/
With so much gratitude,
Victoria