Please take the time and read.
2015 was a great year and I had no idea I was so unwell.
I was doing everything I could dream of running my own wellbeing, workout centre and smashing out my fitness classes. I was suffering with joint pain, would feel exhausted, had a cough that would come and go, sniffles and would have night sweats that would wake me up! But I put it down to over doing it, the time of the year as it was coming into winter and also being a women I just thought it was one of those things!
Then October I started suffering with an ear infection back and forth I went for 6 weeks until I was admitted with my crp at a high of 290. I was fighting for my life. I was so weak I couldn't t walk my muscles were disappearing in front of my eyes. My mouth was covered in ulcers, I had lost all the feeling in the right side of my face and my tastebuds had disappeared. My mum and sisters would have to assist me to the toilet or shower me and at night I would have a bed pan as I could stand on my own. After 2 weeks of tests, MRI, CT, X-ray and a lung biopsy I was diagnosed with GPA Vasculitis. I had no idea what this meant but I was told I would need to choose what treatment I was going on.
This was because I don't have any children and I was about to start Chemotherapy and my consultant was concerned for me. I hadn't thought of children before this but I had no time I need to choose the drug that would give me the best fighting chance.
On my realise from hospital I was in a wheelchair I was bed bound for a further 4 weeks. I looked as if I was dying!!! I had gone from a healthy 8st7lbs to just under 7st. I was scared and felt so alone.
It was a long and painful road to recovery but I found strength I found Vasculitis Uk. Without the love help and support from the Vasculitis team I wouldn't be here today. They have done the research to help get us the correct treatment and have fought for answers and doctors to take note. This is a charity run by Vasculitis suffers and their family, friends small in number but huge in heart.
So a year and a bit on I am fighting for a new normal life and I am fight it amongst others to help raise awareness and with the dream of someday there will be a cure. Maybe not for me but for someone else.
Myself and my beautiful husband to be will climbing 8 welsh mountains within 8 days or less as it took 8 weeks for me to get answers. We will be starting this journey the day after we get married.
This is our honeymoon to show that we are stronger together that Vasculitis UK holds a big part in our hearts as we do each other.
Please help change a life, please help raise awareness. You will never know how much this means to those who are fighting and to the families who have lost their loved ones to a disease that has no cure.
All our love xox