Thanks for taking the time to visit my JustGiving page.

Our precious baby boy Ardi was recently diagnosed with a genetic disorder called STXBP1, a very rare, incurable condition, affecting only 750 people (mainly children) globally. STXBP1 is horrible and severely restricts a child's development, causing a range of severe physical and cognitive challenges. 

So, I'm going to attempt to run/walk/crawl the Thames Path Challenge on Sept 10, which is a 100km shift along the River from Putney to Henley, to help raise awareness. 

Our aim is to raise money for the STXBP1 Foundation. This group represents a critical support network for families like ours, whilst also searching for a cure. 

All donations will be gratefully received and help us find a better future for Ardi and other children with genetic conditions like STXBP1.