Story
Last year a family member was diagnosed with Huntington's Disease, because the disease is hereditary the chance of my husband or children having the same disease is a strong possibility.
There is no cure for this disease, however through research medicine is available that can help to reduce the side effects of the disease. Funding is vital to continue to support the research and help develop medicine that could reduce these side effects even more in the future.
Myself, my mum and uncle Norman will be cycling from Tower Bridge to the Eiffel Tower in August 2020. Myself and my mum have no cycling experience but are up for the challenge, Uncle Norm is coming to support us.
We are organising the event and paying for all hotels, crossings and support vehicle ourselves so 100% of what we raise will go directly to the charity.
You can follow our journey from non athlete to elite cyclist on our facebook page: Tower2Tour
Here is a little bit more of the technical info if you would like a read.....
Huntington’s disease is an illness caused by a faulty gene in your DNA (the biological ‘instructions’ you inherit which tell your cells what to do). If you have Huntington’s, it affects your body’s nervous system – the network of nerve tissues in the brain and spinal cord that co-ordinate your body’s activities.
Huntington’s can cause changes with movement, learning, thinking and emotions. Once symptoms begin, the disease gradually progresses, so living with it means having to adapt to change, taking one day at a time.
Living with Huntington’s disease can be very challenging. Getting the right information and support is vital and we’re here to help.
Although there is, as yet, no cure, you can learn to manage symptoms more effectively to improve your quality of life.
Thank you so much for your support... its really appreciated :)
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