Story
Thanks for taking the time to visit my JustGiving page.
On April 23rd I am going to try and convince my body that it can get around the 26 mile course. While I do this I would like to raise some money and awareness for NASS (National Axial Spondyloarthritis Society). If you are like me, you won't have heard of this before (90% of people haven't). Those in the know tend to call it AS to avoid issues with pronunciation.....I still don't get it right!
In 2021 my beautiful wife, Emma, was diagnosed with AS. It was a relief to finally have some answers to her daily chronic pain and random bouts of near immobility - later we found out these were called 'Flares'. For a PE teacher who has spent her entire life swimming, running or in the gym, the immobility was a frightening and unwanted companion. With a lifelong treatment plan in place we are all learning to live with AS. It never leaves us alone and it’s in our thoughts daily, but with the help of NASS and the medical team at Gobowen, Emma is starting to get herself back on track!
My Training for the marathon hasn't exactly been comprehensive. I fully expect it to be a painful experience, but I know that my pain will go within a week. Those who suffer with chronic pain don't have that luxury. Emma and those who manage AS daily are the real heroes. When I cross the line Iris, Eva, Harry, Eleni and I will be thinking of Mummy.