tom barnley

Tom's page

Fundraising for Muscular Dystrophy UK
£1,981
raised of £250 target
Donations cannot currently be made to this page
Event: Pedal, Paddle, Peak, 2021, on 3 July 2021
Pedal Paddle Peak 2021
Campaign by Muscular Dystrophy UK (RCN 205395 (England and Wales) - SC039445 (Scotland))
Teams of two and four will Pedal, Paddle, Peak, through the beautiful Lake District on Saturday 3 July to help beat muscle-wasting conditions.

Story


We're taking on Pedal, Paddle, Peak, in support of Muscular Dystrophy UK because they need support now more than ever.

We will pedal 30 miles on an undulating route from Penrith alongside the Lake. Paddle 2 miles in a canoe on Ullswater Lake followed by trekking up and down Hellvelyn Mountain (the second highest peak)

Tom, Mike, Ben & Jez are being inspired by Tom's youngest son Harry who has Duchenne Muscular Dystrophy. Harry was diagnosed when he was 5 years old (he's now 12) Harry is doing really well for a boy living with Duchenne but devastatingly we know what the future holds, he will become a full time wheelchair user and then his upper body will begin to shut down due to this rare and painful condition leaving him locked inside his own body. As a muscular degenerative disease his heart will fail, almost certainly before he is 30. The most difficult part - there is no cure, it will happen and it is 100% fatal.

Muscular Dystrophy UK is the charity for the 70,000 children and adults living with muscle-wasting conditions in the UK. There's currently no cure, and it many cases, it limits lives. MDUK fund world-class research into treatments and cures as well as providing vital information, advice, resources and support for individuals and families living with these conditions.

So, we are back raising awareness and funds. If you've got this far then thank you for taking the time to read why this is so important to us.

All donations, big or small, are greatly appreciated. Thank you!



Share this story

Help tom barnley

Sharing this page with your friends could help raise up to 3x more in donations

You can also help by sharing this link on

About the campaign

Teams of two and four will Pedal, Paddle, Peak, through the beautiful Lake District on Saturday 3 July to help beat muscle-wasting conditions.

About the charity

Muscular Dystrophy UK

Verified by JustGiving

RCN 205395 (England and Wales) - SC039445 (Scotland)
Muscular Dystrophy UK is the charity bringing individuals, families and professionals together to beat muscle-wasting conditions.

Donation summary

Total raised
£1,980.13
+ £163.75 Gift Aid
Online donations
£872.13
Offline donations
£1,108.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.