Story
Thanks for taking the time to visit my JustGiving page.
On 22nd June I'll be embarking on the challenge of the 46-mile Pathfinder March around Cambridgeshire. I've been inspired to do this to support two wonderful charities: Matthew's Friends on JustGiving, and the UK Infantile Spasms Trust on BTMyDonate.
Our wonderful 3-year-old daughter, Eliza, suffers from infantile spasms. Although she has developmental delays, we're so grateful that she is making slow progress. Some children are less fortunate and also suffer from additional health conditions alongside IS. Matthew's Friends is a UK registered charity which supports ketogenic diet based therapies. Ketogenic diets are not some cranky alternative treatment; they are prescribed and monitored by heath professionals, typically in cases of epilepsy and other neurological and metabolic disorders which have proved difficult to treat with drugs.
Unfortunately the ketogenic diet didn't work for Eliza but we are nevertheless grateful admirers of the work of Matthew's Friends.
Infantile spasms is a rare seizure disorder - a type of epilepsy. West's Syndrome is a subset of infantile spasms. The condition can be very difficult to recognise, but is potentially very damaging if left untreated.
I'm also fundraising for the UK Infantile Spasms Trust
https://mydonate.bt.com/fundraisers/timthomas1
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.