The MPS Society supports families of children born with a range of very rare genetic diseases.  Only 1500 families in the UK are affected.

The diseases cause physical disabilities and for many, mental disorders.  All are progressive which means they worsen over time.  All are life limiting.  Children born with the most severe of these diseases have a life expectancy of less than 10 years.

Over the past 10 years, research has produced treatments for some of the diseases which can alleviate some of the effects.

The MPS Society supports families and provides an advocacy service to help access suitable education, home adaptations and social care and support.

The MPS Society also fights for children to have access to drugs which can relieve suffering and extend life.  Money raised also helps to fund research into new treatments such as gene therapy.

My family has been a member of the MPS Society since 1981 when my sister Elisabeth was diagnosed with Hunters Disease.  Elisabeth was given a life expectancy of 8 years.  The only treatment available was bone marrow transplant which myself and my brother donated.  Sadly, neither transplant worked and Elisabeth died at the age of 4.

Being a Dad to two healthy children has made me appreciate even more the difficult time my family went through when my Sister was diagnosed.  I would like to raise money to help families going through distressing times, to give them support and hope.

I'm really excited to have this opportunity to take part in the London Marathon and to do this for a charity so close to my heart is an absolute privilege. 

Thanks for your support with my London Marathon JustGiving challenge!

My page donations will be sent direct to the charity in a fast and secure way. Its efficient, saves time and cuts costs for the charity. Let's do this!