Story
Our names are Tom Hardie and Col Lovatt. Hasti is the daughter of serving Soldier Major Chris Brannigan.
Hasti is 8 years old and dreams of being a chef and a dancer. She however has a rare genetic disease, Cornelia de Lange Syndrome (CdLS). CdLS is characterised by reduced growth, global developmental delay, feeding problems, speech and language difficulties hearing problems and, in many cases, limb abnormalities, but it is rare for children with CdLS to become adults who live independent lives, often needing round the clock care for their entire lives. No cure or treatments exist for this terrible disease which occurs in just one in every 30,000 live births, but we are committed to change that so that all children with CdLS, both now and in the future, can enjoy better lives. But to do that, we need your help. We just need £400,000 to pay for the research to create a treatment for this disease.
We are carrying out this 96 mile, 4 day cross country trek of the West Highland Way during our own holiday period starting on Wednesday 5th August 2020. The route starts in Milngavie, just north of Glasgow, and finishes in Fort William in the Highlands. We intend to complete the walk in 4 days and we will be carrying all of our own equipment and will be wild camping along the route. Please help us to raise a small amount to help contribute towards the overall target. Any donation no matter how small will be gratefully received. Thank You.
Hasti's story can be followed on Facebook.
https://www.facebook.com/HopeforHasti/