Story
On May 19th 2018 along with a group of our family and friends we will be attempting to summit the second highest mountain in Britain (*gulp)!! Our group includes people of various ages and abilities and this venture will be quite a challenge for everyone.
We are doing putting ourselves through this in order to raise awareness of Niemann-Pick diseases and much needed funds for NPUK. This amazing but small charity provide vital support to families touched by these horrendous diseases and help fund future research. Here is our inspiration behind all of our fundraising:
Meet Harvey- our very own Brave Little Soldier.
This amazing little boy came into our lives in December 2016. Harvey is my nephew, he is a son, a grandson and a great grandson but most importantly he is just Harvey; a little boy who loves music, giggles uncontrollably at being tickled and is loved unconditionally by not only his family, but anybody who meets him. Sadly, Harvey has faced many health difficulties since birth and in early 2017 was devastatingly diagnosed with a very rare and life limiting disease called Niemann-Pick Type- C. This is also known as 'Childhood Alzheimer's' as symptoms portray in a very similar way. This page and all related pages are dedicated to him. To raising money for a charity focused entirely on helping children like him and families like ours.
Together we can make a difference and hopefully help find a cure for this horrible disease!!
Thank you for all your support!